My kidney disease made me anemic as well and that' still the case but I guess it takes a bit for the new kidney to produce the hormone that tells your bones to make the red blood cells that increases your oxygen and makes you strong enough to climb stairs without feeling winded.
But the best news is that my staples came out yesterday. There were 32 of them and it was a little unsettling as my doctor was trying to ask me questions and talk to me while they were being taken out by her assistant. There was a little pinch with each one and on top of that they were located in the most ticklish spot on my body so I was edgy just anticipating him accidentally tickling me and me jumping and and his tool that he snipped them with some how cutting into me. It was a nightmare and a relief all at once.
I mentioned the AFib in an earlier post. It sounds like I'll be seeing someone about that in the next week or two. Personally I'm still a little suspicious that my heart rate didn't change because of one of my new meds. But I guess not having a medical degree eliminates my opinion from any serious consideration from the kidney team. Similar to when I had my emergency room visit for throwing up and it was my opinion that it was digestion related but it was theirs that they should switch my cellcept to the pill I'm on now that I started on the Thursday night before my heart rate started acting funny the next morning.
To be clear, on the morning I got sick I woke up feeling fine. I made some tea and toast and before I could start enjoying it I felt a little sick and ran to the bathroom and threw up. No pills were involved. An hour or so later I took my pills. Then as the day went on I threw up about 8-9 more times. It was about 2:00 pm before we decided to head to the hospital. There were meds given to me while I was in the ER and my eventual over night room, but most of those weren't related to the regimen of pills I'm required to take twice a day... at least until approx 8:00 pm that night. So how it could have specifically been the pill they swapped out, or the fault of any pill, I really don't know. But as I've already mentioned... my logic and my opinion hold no weight here.
Now, if all of that wasn't annoying enough in it's own way, there's the whole low phosphorus thing, which was so low on Monday that my kidney team called it "dangerously low" and told me to get to the nearest ER ASAP. I did exactly that and in the end it was decided I would start taking a pill called K-Phos, which would increase my phosphorus. So my kidney team called it into my CVS on Tuesday. CVS texted me to let me know they were special ordering it and would text me when it was ready. I've received no text since then and decided to call this afternoon to find out what the hold up is. It turns out they can't seem to get it so they've been calling and faxing my doctor to let them know, meanwhile they never contacted me to let me know... I could have taken some kind of action to get the ball rolling if only I had known about it. So my life is in danger, but CVS can't get what I need to help me remedy that. Is it me, or does the world feel like its becoming more incompetent with every year that passes?
Don't get me wrong, I appreciate the work the kidney team has done to put this lovely kidney in me that should give me at least a few years of dialysis free living and hopefully several years. But between them and CVS I'm feeling like I'm working with amateurs here.
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